PAF’s Sickle Cell CareLine provides one-on-one assistance with a professional case manager to help qualified patients and caregivers resolve financial, job-related, and healthcare access issues that may be the result of a patient’s Sickle Cell diagnosis. In order to qualify for case management assistance, the patient must have Sickle Cell disease, or screening of and must be receiving active treatment for the disease, must have received treatment for the disease within the last six (6) months, or will begin treatment in the next 60 days. PAF’s Sickle Cell CareLine provides assistance with resolving a broad variety of patient and caregiver concerns including: (1) access to care (e.g., assistance in obtaining prior authorization approvals; second opinions, insurance appeals; insurance plan review); (2) cost of care (e.g., co-pay assistance, premium assistance); (3) cost of living expenses (e.g., rent, utility, transportation, food/nutrition assistance programs);(4) safety net program support (e.g. SSDI, LIS, Extra Help enrollment assistance) and (5) employment-related issues (e.g., FMLA, short-term and long-term disability). PAF’s Sickle Cell CareLine identifies sources of assistance, including other charitable organizations and government-sponsored programs, and assists patients in enrolling in these services as appropriate.
PAF will not consider the identity of any physician, provider, supplier of items or services, donor, drug therapy, services or supplies being utilized, or the referral source when assessing whether an applicant is qualified for assistance through PAF’s Sickle Cell CareLine. Further, assistance through the Sickle Cell CareLine is not dependent on the use of a particular drug, particular supplies, or particular provider or suppliers and patients are free to switch drug therapies, treating physicians, pharmacies, and suppliers at any time without affecting their continued eligibility for assistance from PAF.
Qualifying patients are provided one-on-one assistance by PAF’s Sickle Cell CareLine until their access to care, cost of care, cost of living, or employment-related issues are resolved. Assistance is provided to the extent the Sickle Cell CareLine has capacity to provide assistance with no preference being given to patients from any one referral source.
Patients’ contact information may be used in the future to share printed and/or electronic communications from Patient Advocate Foundation and the PAF Case Management program (including the CareLine). If the patient does not wish to receive print and/or electronic communications from PAF, he/she may contact the program at (1-855-588-6362) and request to have his/her contact information removed from the mailing list.
Patients’ data may also be used in de-identified aggregated reports. This means that information patients provide to the Sickle Cell CareLine may be combined with other patients’ data to prepare reports analyzing patient needs and the Sickle Cell CareLine. PAF will only use de-identified patient data, i.e., patient data where all identifying data terms like the patient’s name, identifying numbers, etc. have been removed.